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Gianna, was diagnosed with Sanfilippo Syndrome in June 2021. Her family is heartbroken, but is “fighting the big fight.”
In a message her family posted to Facebook: [Sanfilippo Syndrome is] one of the ????? childhood diseases out there, and currently there is no cure. Gianna is one of 70,000 children diagnosed with this devastating disease. We need funding. We need more research. We have partnered with the Cure Sanfilippo Foundation to help raise money for treatment, for research, and so much more to help Gianna and all these children fighting the fight against this disease.
Date & Time:
Friday, May 20, 2022
8:00 AM – 5:00 PM
Venue:
Pevely Farm Golf Club
400 Lewis Rd
Eureka, Missouri, United States
This event has ended.
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